Hers is a story of courage, faith and hope in spite of the cards she was dealt by life.
Two years ago, Rhonda Sauls of Walterboro was diagnosed with ovarian cancer. But in spite of the challenges she has faced, she has kept a positive attitude and her faith in God.
She had problems with her cycle since she was 19. She was told she had a virus, that if she’d lose weight, her problems would get better. She asked about a hysterectomy over the years and was told it “wasn’t medically necessary and the insurance wouldn’t cover it. Nobody ever dug deeper to see what the problem was, what was causing it,” Sauls said. The only recommendations were to lose weight.
Then about two years ago, she started swelling. “I got to the point where it was like I was nine months pregnant. I couldn’t even wear my clothes,” she said. She went to the local emergency room, where they did a CT scan.
“I think they didn’t really want to tell me that I had cancer. They just said it could be my liver, endometriosis or it could be cancer. That I needed to follow up with a GYN.”
She tried to make an appointment here, but their next available appointment was in over a week. And her gut told her not to wait. So, she went to the ER at the Medical University of S.C.
“The doctor was very, very nice. I remember his name was Patrick. I told him what they told me in Colleton County, so he knew I knew there was a possibility of cancer. And he came in and got on his knees in front of me and told me ‘I’m so sorry. It came back that it is cancer.’ He said it’s ovarian cancer.”
“I think he was expecting me to fall apart, but I’d kind of braced myself for the worse. And I said, ‘OK. What do we need to do?’” Sauls said.
They admitted her, and the next day, removed 4.3 liters of fluid from her abdomen and scheduled her for a hysterectomy a couple of weeks later.
Then in January, the chemo started. “They thought it was working at first, but I was having a lot of side effects — I felt like I was going to pass out.” So they had to dilute the chemo and extend the time period over which she received each dose. There were days when the diluted treatment took a whole day to complete.
“It was just a lot. It was time consuming. It was a lot of travel back and forth, a lot of doctors appointments — and a lot of sickness along with it,” she said. Fluid in her abdomen, around her hearts and lungs, blood clots in her lungs, a bowel blockage that resulted in a colostomy.
And it didn’t work. Neither did the several different treatments she’s undergone the last two years. “The first treatment was to stop the cancer, to cure it. After that didn’t work, they basically told me the other treatments are to just to prolong my life. They’re not looking for a cure.
“Things just continue to get worse. Nothing really seems to be working at this point. But they are starting me in January on a new treatment. They say they’ve had good results with the clinical trials on it, so we’re hoping for the best with that,” Sauls said. The new treatment in clinical trials showed 10% of the patients came out cancer-free and 28% had significant improvement, which would make it worth the side effects. “So we’ll see. Hopefully, I’ll be one of those patients.”
Advice to other cancer patients
Ask questions.
“I always tried to stay informed, but the fact that my diagnosis changed, and I wasn’t aware of it, kind of tells me I probably wasn’t asking questions early enough,” she said.
After seeing a new doctor at the Hollings Cancer Center, she found out what she thought was ovarian cancer had been changed to stage 4B uterine cancer, which mimics ovarian cancer but is more aggressive.